Trijau, S., Pradel, V., Servy, S., Lafforgue, P., Pham, T. (2018)
Background: Personal health records (PHRs) are patient-controlled repositories, capturing health data entered by individuals and providing information related their care. These tools improve treatment adherence but data are scarce concerning tool adherence. The accuracy of the self-recorded data remains controversial. We assessed how support measures improve PHR adoption determined the factors that influence the accuracy of self-recorded data and tool adherence of RA patients.
Methods: A controlled randomized study with a PHR tool with integrated electronic health records developed by SANOIA. RA patients with ACR/EULAR 2010 criteria with web access randomized into 3 groups: Group 1 patients were given written information to create and manage a PHR; Group 2 patients received written information and a web technician hotline 48 hours after inclusion; Group 3 patients began their PHR with their rheumatologist during the consultation.
Results: 56 RA patients were included (female: 73%, mean age: 57.1, mean DAS28: 3.04, mean RAPID-3: 2.93). Self-reported data accuracy was significantly higher in Groups 2 (73.7%) and 3 (82.4%) than in Group 1 (45.0%), (P = 0.04). Patient adherence was higher in Group 2 (78.9%) compared with Groups 1 (55.0%) and 3 (58.8%) (P = 0.45). Accuracy was correlated to adhesion (P <0.0001). Gender, age, disease duration and activity, treatments, and patient level of interest were not correlated to data accuracy or patient adherence.
Conclusion: Information accuracy collected with PHR was relevant and better when patients were initially assisted either by their physician or by non-medical phone support. We also observed better adherence when patients were initially assisted.
(publication) Trijau, S., Pradel, V., Servy, S., Lafforgue, P., Pham, T. (2018). Patient e-health platform for Rheumatoid Arthritis: accuracy and adherence factors.